Tag Archives: reflections

First day in school

fishhhh... yummy

ready for schoolAfter busy vacations, which included time away in Poland, Antoni returned to school. “Returned” might be a wrong word, as he started a new school. Not only that, it is further away from home, so he is going to go by a school bus every day.

We were a bit concerned about Antoni yesterday. He had a bad experience with a couple of rowdy kids in Poland, and became scared of strangers again, mostly kids with bikes and scooters. With …


Changes

What’s been happening recently? A lot of changes in Antoni’s life …. We moved home. Our new place is smaller, but quite nice and what is more important, very close to the nursery. Mum started a new job. It is a 6 months assignment but she likes it! It is a full time job and it is very demanding. She may have to travel 1-2 times a month. She still has her old job as Antoni’s carer, assistant, therapist, cook, …


Going back to work

Friends often ask me if I am back to work. These are often people close to me, who I thought understood my situation and what it meant to look after a child with complex medical and developmental needs. Sometimes they offer friendly advice … like, you should do something for yourself, go to a spa, cinema… I feel very isolated then …

We get up at 6:00 in the morning. Feeding, nappy change, massage (speech and language – SLT), brushing


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