Category Archives: Celebration

peas and carrots


Antoni cam back from school today with the following note from his teacher … “ate all his lunch including peas and carrots”.

I guess the following saying must be true “with age comes wisdom …”. I am glad that it has taken my son only 7 years to realise that vegetables are edible!

Happy 7th Birthday Antoni!

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Christmas is around the corner …

May the spirit of Christmas bring all our friends and their families hope, happiness and love. Merry Christmas and all the best in the New Year!

We didn’t realise how quickly the last months of 2016 have passed. They were filled with Antoni’s medical appointments and hospital stays. Unfortunately, with time left we only managed to send cards to immediate family. Thank you for all the wishes we have received from you!

Our last blog entry was about Antoni’s first …

Greg Terka

On Saturday, 23rd July, our friend Greg Terka sets off for his longest yet motorcycle trip: London – Siberia.

He is going to ride across Europe, Russia, Kazakhstan and Mongolia. He plans to complete the 20,000 km (12,500 miles) trip in 2 months.

During his journey Greg wants to support Antoni and raise awareness of other kids with Kabuki Syndrome.

Greg is an extremely positive man with a big heart. We wish him a safe and exciting trip!…

Last Day of School

19th July was the last day of English school for Antoni (Polish school finished on 26th June).
In September he will go two classes up, as the teachers believe Antoni is doing very well at school and should be able to manage skipping a is there generic viagra in canada class. He will again be the youngest, and there will be more children in the class than last year – eleven.
Antoni will also attend the mainstream school once a …

Sixth Birthday

On 10th of July Antoni had his 6th birthday… and not so long ago he was so little: http://www.a
For the last few weeks Antoni constantly talked about the upcoming birthday party and the invited guests. There were about sixteen children at the party (we lost count after about ten). There were children from both English and Polish (Saturday) school, and also friends from outside school. We choose the same place as last year and we hope that everybody …

bad hair day

Christmas is here …

We just received some beautiful Christmas photos of Antoni (with parents as well), taken last week in Polish Saturday School.

Thank you Agnieszka and Mariusz from for your special gift!


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Do you believe in magic?

Antoni and mum had the most magical experience ever … yes, that is us in one of those Black Cabs just few days

ago and yes, M25 was closed and there was no one else on the motorway except 100 black cabs, medical teams, ambulances, police and French gendarmerie travelling to Disneyland! Click on this link to see the convoy on …

who is the Star

Fifth birthday

Another busy weekend for Antoni.

It was his 5th birthday on Friday. Antoni attended transition day at the special school where he is due to start in September. He spent the whole day (9-3) there with his new teachers and schoolmates. Antoni’s current 1:1 teacher was there as well to help in the transition. Antoni did quite well, settling in the new environment without any fuss and was a cooperative pupil, only lacking in concentration. The day was more difficult …

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