ignorance is the greatest disability

I sometimes meet people who I have not seen for a while  … they often say to me something along those lines … Antoni is doing so well, all is OK now, he is like any other child.

It is not a question about Antoni’s wellbeing. It is a statement. They are glad that the distress is over and we can all live happily now.

I often loose interests in those people and yet another number gets deleted from my …


peas and carrots


Antoni cam back from school today with the following note from his teacher … “ate all his lunch including peas and carrots”.

I guess the following saying must be true “with age comes wisdom …”. I am glad that it has taken my son only 7 years to realise that vegetables are edible!

Happy 7th Birthday Antoni!

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Proud Sunday

Just in few days Antoni will turn … 7!

Every night before bed Antoni needs to drink formula, to prevent his blood sugar level from dropping below safe levels. After Antoni took a bath, I went to the kitchen to prepare the feed, and what do I see when I come back? My (almost) 7 year old lying in bed and … independently reading kid’s magazine.

Two years ago Antoni started his education in English special school. Amongst many reasons …

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Prime Minister

Antoni asks me out of the blue: Do you know what “Prime Minister” is?
me: well, do YOU know  what “Prime Minister” is?
A: I know.
me: so, what is it?
A: It is too difficult, you would not understand.
me: Well, maybe you can try.
A: No, I would be 15 years old by the time I’m finished explaining it to you.

10 min later, Antoni randomly comes up to me  and says: well, first is voting and …

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trip to the beach

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Antoni in numbers

We have been very quiet on this page recently. However, we kept ourselves busy – during the last 6 months  Antoni was:

  • 4 times admitted to A&E
  • 10 times unwell and seen by GP (does not include times when he is unwell but we were able to cope with it at home)
  • 4 times reviewed by paediatrician
  • 14 times seen by another specialist in major hospital (including ENT, urology, gastroenterology, etc.)
  • 2 times reviewed by local specialists (podiatry, physiotherapy)
  • 1


(Polski) Prosimy o przekazanie 1% od Waszego podatku



Christmas is around the corner …

May the spirit of Christmas bring all our friends and their families hope, happiness and love. Merry Christmas and all the best in the New Year!

We didn’t realise how quickly the last months of 2016 have passed. They were filled with Antoni’s medical appointments and hospital stays. Unfortunately, with time left we only managed to send cards to immediate family. Thank you for all the wishes we have received from you!

Our last blog entry was about Antoni’s first …

1% for Antoni in 2016

This post is available only in Polish.…


Day 1